Prolife spotlight: St. Joseph’s House and Isaiah’s Promise offer support, respite, and joy to families of the disabled

Cubby LaHood used the term “D-day” for the day parents first hear their unborn child has a severe or fatal birth defect.  

“The baby is the same baby they conceived and were joyful about, but … the baby can become a stranger,” she said in a 2013 40 Days for Life address.

LaHood, who died in 2015, suffered the same crushing shock herself, when her baby Francis got a likely fatal prenatal diagnosis. Everyone offered the couple abortion — doctors, clergy, family, and friends. But she and her husband Dan decided that they would love and carry their son Francis as long as he lived.

 
The LaHoods firmly believed unborn children with severe or fatal diagnoses deserve to live. But they also came to understand that carrying such children to term, rather than resorting to abortion, can bring healing, strength, and even joy to the parents and family, and even to the rest of the community, whether the child dies before he is born, or if he goes on to live for several years. 
 
“Hope led to grace, grace led to faith, and faith led to peace,” she said. 
 
Cubby and Dan LaHood went on to found two organizations based in Maryland, to offer encouragement, resources, and tangible support to people with disabilities and their families. Isaiah’s House, founded in 1995, offers personal support for families carrying to term after a severe or fatal prenatal diagnosis.
 
“In seemingly the most hopeless and difficult of circumstances surrounding the birth of a child, a simple ‘yes’ to life reveals the presence of God, and the presence of love,” she said in a video called “Destined to Live Forever.”  
 
They believe that even a very short life has meaning and power. “[These parents] conceived a miracle, and that miracle deserves all the support that you can give it. It’s about more than you,” LaHood said. 
 
Pro-lifers are frequently accused of being merely pro-birth, of counseling parents to reject abortion, but then abandoning them after the delivery. The LaHoods’ mission refutes this accusation. The other organization they founded, St. Joseph’s House, offers daycare, summer camp, and after-school programs, and respite programs for families of children with disabilities.
This effort, too, sprung out of a personal experience. When Cubby LaHood was pregnant with her first child, she wanted to stay at home, so she decided to open a daycare. The first client she found had a disability, and word quickly spread that LaHood was willing to care for disabled children. 
The family soon made it their mission to make a true home for these children, and to counter “the eugenic impulse” of the world that wants to reject anyone deemed imperfect or useless. St. Joseph’s House is now run by the LaHood’s daughter, Natalie. 
 
Cubby LaHood didn’t believe her family was special. “We all have the capacity to give love,” said LaHood. “It can be done without support — we did it without support — but there’s no reason for it to be done that way.”
 
 The LaHoods do not minimize or sentimentalize the difficulty of carrying and caring for a child with disabilities.
 

“Nobody wants to go through the Passion,” said Dan LaHood “No one wants to go through the Garden of Gethsemane. But once you go through it, you find there’s the spirit of God. There’s resurrection. Not only there’s life, but it’s eternal, and it’s more than you could ever imagine; and you can experience it now.”

None of the hundreds of couples they’ve walked with have regretted their choice, the LaHoods said. 

“Even in this worst, most darkened, most rejected place, God is. Love is.”

***

 

Image from this video:

Destined to Live Forever from Lumen Catechetical Consultants on Vimeo.

St. Joseph’s House

​Saintjosephshouse1983@gmail.com

On Facebook: https://www.facebook.com/saintjosephshouse/

Isaiah’s Promise

info@isaiahspromise.net

On Facebook: https://www.facebook.com/IsaiahsPromise4915/

St. Joseph’s Place also runs Cafe St. Joe in , “part job skills training, part community builder, and part fundraiser.” The Cafe offers a specialty blend of coffee made by a roaster that employs adults with disabilities, and half the proceeds to go the cafe

***

Previous volumes of Pro-life Spotlight:

We Dignify

Gadbois mission trip to Bulgarian orphanage

Mary’s Shelter in VA

China Little Flower

Immigrant Families Together

Rio Grande Valley Catholic Charities Humanitarian Respite Center

If you know or have worked with an organization that works to build a culture that cherishes human life, please drop me a line at simchafisher at gmail dot com with “pro-life spotlight” in the title.

Hey, doctors: Big families are not on trial

The thing that finally relieved my anxiety about giving birth

Stop me if you’ve heard this one:

A youngish mom with a bunch of kids goes to her doctor with a medical problem. Doesn’t even matter what the problem is: problems with excessive bleeding, problems with postpartum depression, problems with heartburn, problems with sleep. Problems with her knee, her skin, or the way her hair just won’t curl the way it used to.

Any problem, doesn’t matter. If she has more than a few kids, she already knows what comes next: A glance at the chart, the eyebrows go shooting up, and here it comes: “Ohh, I see you have [any number greater than two] kids.”

And that’s all they want to talk about from then on.

They certainly don’t want to listen to you when you tell them, “This isn’t about family size.” They tuck your multipara status into your buttonhole like a red poppy so you can never forget, never forget that you brought this on yourself in some way with allllll those kids, so let’s talk about that, then, eh?

You’ll think I’m exaggerating if it hasn’t happened to you; but ask around among women who have five, six, or seven, or even three or four kids, and you’ll see nods and eyerolls, or even tears. Because it hurts. Women with lots of kids have to prepare themselves mentally every time they step into a doctor’s office. Not only do they have to deal with whatever problem they’re actually there for, they have to defend themselves against insinuations, disapproval, patronizing jokes, and sometimes open scorn.

Now, sometimes, a woman’s maternal history is relevant. If a woman is trying desperately to stop having children, then it makes sense for her doctor to talk about how she can accomplish that (while being respectful of her religious concerns). If pregnancy and childbearing are damaging her health, it makes sense for her doctor to talk about her plans for the future. That is the doctor’s job, and a good doctor thinks more wholistically, beyond the immediate problem at hand.

But that’s not what I’m talking about.I’m talking about women with many children being treated as if their wombs are a pandora’s box from which all ills and troubles flow. I’m talking about doctors behaving as if we’re nothing but a walking, whimpering uterus, and there is no sense in even discussing any other medical issue until we figure out how to put a cork in it.

Here’s what happened to me in the last week of my last pregnancy:

I had already given birth nine times. I knew what it was going to be like. There was no maternal amnesia strong enough, and there was no new technique I was going to learn for pain control or emotional calm.  I knew what was coming, and that it was going to be rough, because that’s what childbirth is like. I was weeks or days away from giving birth, and I couldn’t sleep, night after night, because I was nervous about the delivery. Naturally, my exhaustion only fed into the anxiety.

So I went to the doctor and asked if she could prescribe something safe to soothe my anxiety and help me sleep, just to tide me over.

She refused. Their policy said I had to visit their staff psychiatrist first. Okay, could I make an appointment? Oh, sure — there was an opening in three days.

Three days may not sound like a lot to you, but I was within five days of my due date. I hadn’t slept in maybe four days. Everything hurt, all the time. And I knew with all my heart that I wasn’t going to magically enjoy peace of mind just because, thanks to my doctors, I could look forward to talking to a complete stranger about my emotional state at 39 weeks. Could I maybe get a three-day prescription to get me through until then, just to take the edge off? No, that wasn’t their policy.

I WAS SO ANGRY. There was no reason for this. No reason at all. But they wouldn’t budge.

So I cooled my heels at home (actually, my heels, like the rest of me, were puffy, inflamed, and in constant pain) and turned up for the stupid appointment. The first thing she wanted to know, after introducing herself, was how I felt about having so many children.

Yeah.

Imagine there’s a building on fire, so you called the fire department — only to discover that, before they would even unroll a hose, they wanted to file a request for documents proving that the contractors who built it had been unionized.

Would that be reasonable? Maybe they were unionized and maybe they weren’t, and maybe the answer to that question would shed light on the current situation and maybe it wouldn’t. But right now, maybe let’s PUT OUT THE FIRE.

So I knew already knew I was being treated badly. But I also knew that, the more I protested, the more likely I was to be flagged as a drug-seeking patient, so I tried to speak calmly. I had already plotted out what I was going to say.

I told the doctor, “I am happy with my family size, and I do not need advice about family planning. That is not why I am here. My anxiety is not related to anything but childbirth. It is purely situational anxiety. When I give birth, I will no longer feel anxiety about giving birth. What I need is something to help me through the next few days, because I can’t sleep. That is the problem I need help with.”

And you know what she did? She kept me in that room for another fifteen minutes, probing and questioning me about my history, my long-term psychological state, my experience in past deliveries, and anything else she could think of, based on nothing but the number of times I had given birth. There were no other red flags in my history, nothing that would signal to any medical professional that I was being abused, that I was unhappy beyond normal pregnancy ills, or even that I was overwhelmed with my life in general. But she kept asking. And I just kept repeating:  “That is not relevant. This is situational anxiety. I just need to get some sleep.”

Finally, with deep and obvious disapproval, she wrote out a prescription for a mild antihistamine, which didn’t work at all. I burned through the next week in a sleepless rage, angrily gave birth, and spent the next week remembering how to sleep, and calming the hell down.

Now, you tell me.

If I were, say, a topless dancer, and I told my doctor I was nervous about upcoming foot surgery, and I wanted a prescription to help me sleep for a few days until the big day, would I have gotten a slew of lifestyle questions, probing and digging for signs that I harbored some secret regret about how I spend my days?

If I were a trans man with AIDS, and was feeling tons of anxiety about an imminent job interview, would my doctor have given me a referral for next week with a psychiatrist who wanted to sit me down and have a chat about my past and future choices about my body, my family, my life goals?

If I were anyone at all, and I turned up in a doctor’s office with an obvious and solvable problem, wouldn’t the doctor just . . . help me solve that problem?

But I had lots of kids. Lots of kids, and I was in a long-term, stable marriage, and I was fully employed, a long-term patient with no criminal record, no history of drug or alcohol abuse, no smoking, no psych issues, no weird bruises, no nothing. I got regular exercise and took my vitamins. I had turned up at every appointment well-nourished and well-informed, with no panic, no hysteria, no delusions, no complaints about anything other than, “I am pregnant and my feet really hurt.” It was very easy to explain why I was feeling anxiety and dealing with insomnia. It was very easy to predict when I could conquer those issues.

But she didn’t want to hear that. She didn’t want to believe me, because I had a lot of kids.

Guess what? That experience of not being listened to was so frustrating and painful and infuriating, it made it ten times harder for me to make another appointment later, when I really did need help with larger psychological issues (also unrelated to childbearing!). I thought, “They’re just going to say, ‘Well, this is what you get when you have so many kids; sorry, we can’t help.'” Because that is what they have always said.

So I didn’t go, and I didn’t go, and I didn’t go.

That’s what happens when you treat women like they can’t be trusted: You lose their trust.  And that means you’re not doing your job.

Doctors, this has to stop. When you see a patient with lots of children, she should be treated like any other patient. Keep eyes and ears open for signs of abuse and signs of distress, just as you would with any other patient, but do not behave as if the large family itself is a red flag. It’s offensive and disrespectful beyond belief, and it puts women constantly on guard. It’s okay to ask if she’s happy with her current family planning; but if she says yes, then you simply must let it go. Even if you don’t get it. Even if you don’t approve.

Believe her when she tells you what the problem is. Believe her, even if she has a lot of kids.